DS Down Under

The long awaited THIRD round of t-shirts :D

caspearson — Thu, 20 Nov 2008 08:30:48 GMT

Ok, I've just done up an order form and realised that it's not practical. It is useful to see at a glance what colours and sizes are available for each t-shirt style though, so if you'd like to order a t-shirt, please let me know ASAP by posting in this thread and I'll send the form through to you. I'll take orders for the rest of this week til the end of next week, then we'll have to get it finalised with Aussie Gold before I collect ppl's money.

Cas

Special Education Yes We Can

Amarlismum — Wed, 19 Nov 2008 12:56:07 GMT

This might be about education in the States but after all our discussions about schools/funding etc i thought it might be interesting and usefull

http://au.youtube.com/watch?v=HXQvZK6RjRQ

Enhanced Primary Care - Medicare

Amarlismum — Tue, 18 Nov 2008 05:07:00 GMT

A few people have asked about this, so i'll post some info here about it.

I have just been to an Indigenous Expo and representives from Medicare were there so i asked them a million questions about the Enhanced Primary Care Program.

You are entitled to 5 sessions with a wide variety of health services eg: PT,ST,OT,CHIRO etc, per year, as well as using the 5 visits with the same service you can also choose to split the 5 sessions with different services.

Depending on the service you choose ...

URGENT INFORMATION ::: Government developing National Disability Strategy.

ail175 — Mon, 17 Nov 2008 12:05:24 GMT

The Australian Government is currently conducting a consultation to develop a National Disability Strategy. The aim of the National Disability Strategies is to "improve support & remove barriers for people with disabilities, their families and carers". The development of this strategy is the result of the Gvernment's election promise and their ratification of the UN Convention on the Rights of Persons with Disability. The new National Disability Strategy will guide the governments ...

SCHOOL SPECTACULAR SYDNEY

ail175 — Mon, 17 Nov 2008 12:25:32 GMT

Hi

Aileen here again. Just wanted to let you all know that Elysha is performing in the sydney School Spectacular again this year. This is her 4th year - Elysha performs with students from Liverpool; Hunter Region and Penrith who are deaf. Each year they perform a song and support another act. This year is special. the signing choir has been performing for 25 years. The same teacher teaching the deaf students each year and madly organising everything. This year some of her old students will ...

Government overturns midwife visa decision

trishy — Fri, 14 Nov 2008 21:57:02 GMT

The Federal government has overturned a decision to deny permanent residency to a British midwife and her family because her child has Down syndrome, ending a six-year legal battle

Reaf More

http://www.canberratimes.com.au/news/local/news/political/government-overturns-midwife-visa-decision/1360074.aspx

Auslan/Makaton songs

caspearson — Sat, 15 Nov 2008 12:30:52 GMT

Just thought I'd start a thread where we can post links to songs in Makaton or Auslan that we can sing along with our children

What a Wonderful World

I had to post this first because it's the first song my other kids learnt on the Karaoke machine lol Now Jirah will be able to sing along

Cas

OMG, OMG, Oh my goodness you have to see this / not Ds related

Aden's mummy — Thu, 13 Nov 2008 03:28:52 GMT

How Awesome is this guy? You have love live what he says about smoking to the kids

http://www.youtube.com/watch?v=yo_24_qTNac&feature=related

denied residancy TV tonight

Aden's mummy — Thu, 13 Nov 2008 04:07:54 GMT

this was on the QLD yahoo group

There is a Queensland family who have been in touch with the office who have

been denied permanent residency because their child has Down syndrome. They

will be on A Current Affair tonight if you want to have a look.

Expecting Longer Lives with Greater Risk

Amarlismum — Tue, 11 Nov 2008 12:20:36 GMT

Lives With Greater Risk, Reward first generation of people with Down syndrome who will probably outlive their parents.

Thanks largely to medical advances, Jennifer Holden, above, belongs to the first generation of people with Down syndrome who will probably outlive their parents. But as baby boomers age, achieving independence becomes a more urgent goal for young people with the disability.

http://www.washingtonpost.com/wp-dyn/content/article/2008/11/09/AR2008110902189.html

Expecting ...

Hey Cas, I think it is time to order some more T-21 shirts....pleeeeeease

Tigger — Tue, 11 Nov 2008 04:27:12 GMT

Can we??????

Down syndrome child forces midwife back to UK

trishy — Mon, 10 Nov 2008 18:20:13 GMT

EXCLUSIVE: A HIGHLY regarded British midwife is being forced out of Australia because her Down syndrome child is "a financial burden on the nation".

http://www.news.com.au/perthnow/story/0,27574,24622247-2761,00.html

A Current Affair

Amarlismum — Tue, 11 Nov 2008 05:21:40 GMT

Are doing a segment tonight on their show to do with the discrimination to parents with kids with disibilities, i only caught the tail end of the ad but i think it has to do with all this imigration stuff.

Channel 9 at 6.30pm.

T-21 T-shirts second round of orders

caspearson — Sun, 18 May 2008 15:42:25 GMT

If anyone is interested in some or some more T-21 t-shirts, please put your 'order' here so I can tally up and send off once we reach 20

Example:

Quantity Size Style Colour Print Cost Total 1 2 Child's T-shirt Azure Turquoise Black $15.50 $15.50 2 6 Child's L/S T-shirt Bishop's Purple Silver Glitter $15.50 $31.00

Design:

Options available are:

Sizes:

(Child) 0, 2, 4, 6, 8, 10, 12

(Adult) XS, S, M, L, XL, XXL

Styles:

Short Sleeve T-shirt (Child $15.50 ...

i.d.entity wa

caspearson — Fri, 07 Nov 2008 23:43:14 GMT

i.d.entity wa

i.d.entity.wa is an outreach of the Roman Catholic Archdiocese of Perth. We provide services to people with intellectual disabilities and their families, and have been doing so for the past 30 years.

The organisation was formerly known as Catholic Care. The name i.d.entity.wa was launched on 17 October 2001.

My LAC just sent a trifold brocure about this mob, probably because I mentioned my kids might be going to a catholic school. I never even considered there might ...

Doctor visa denied over disabled son

Cath13 — Thu, 30 Oct 2008 05:03:44 GMT

Just found this on Ninemsn:

A German doctor who emigrated to rural Victoria to fill a critical doctor's shortage will be kicked out of the country because his son is intellectually disabled.

Bernhard Moeller and his family have been rejected a permanent visa on the grounds that his youngest son, 13-year-old Lukas, has Down syndrome.

"I'm so disappointed and upset," Dr Moeller told ninemsn.

The full story:

http://news.ninemsn.com.au/article.aspx?id=657645

The Memory Keepers Daughter dvd

Amarlismum — Wed, 08 Oct 2008 12:39:56 GMT

I have a copy of "The Memory Keepers Daughter" and provided that it has copied ok, (I'm yet to watch it), I'm more than happy to burn it for anyone. Just pm me in the next few days and i'll let you know if the copy is a good one.

Brighter Tomorrows Web Resource

Tim and Tuscan — Sat, 02 Aug 2008 13:40:06 GMT

I wasn't sure if this fitted here but I guess it's a service.

Has anyone checked out or come across http://www.brightertomorrows.org/englishintro.html ?

Scholastics

Amarlismum — Sun, 20 Jul 2008 15:07:30 GMT

Not really recommending a book but more a company.

While organizing our Sydney meetup i sent an email to Scholastics letting them know who we were and what our meetup was for.

I asked would they consider donating some books so that i could give out to all the kids that came.

and they said yes and donated over 20 fantastic childrens books.

The kids loved them(i forgot to take pics )

So i would just like to say thanx to Scholastics and recommend them to anyone else that might be organizing ...

Marathon runner with DS receives an award and inspires others

kb — Fri, 24 Oct 2008 23:44:32 GMT

This is about an award given to the first man with Down Syndrome to complete the London Marathon. The award was from some German runners who formed a group to run in the Berlin Marathon.

http://www.thisislichfield.co.uk/news/Simon-keeps-inspiring/article-421569-detail/article.html

Kathi

Mother of Amy(8)

Senior With Down Syndrome Crowned High School Queen

trishy — Thu, 16 Oct 2008 09:15:21 GMT

The title of homecoming queen is typically reserved for the head cheerleader or student class president, but not so at one Texas high school where this year's queen saw hundreds of onlookers moved to tears as she was crowned.

In Aledo, Texas, Kristin Pass is crowned high school homecoming queen."There wasn't a dry eye to be seen," said Carolyn Pass, the mother of newly crowned queen Kristin Pass, who was born with Down syndrome 18 years ago.

Read more

http://abcnews.go.com/US/story?id=6025166&page=1

Teen Possibles

shelley — Fri, 26 Sep 2008 15:04:20 GMT

Just in case the Dan Drinker fans haven't seen this one - check out: http://teenpossibles.blogspot.com/ It's a beautie!

How a child with DS improves your life ......

Tigger — Fri, 17 Oct 2008 11:46:14 GMT

I saw this on another forum, I have her permission to share it with you.

__________________________________________________________________________________________

Down

syndrome is a genetic disorder characterized by a triplication of the

genetic material on the 21st chromosome. This trisomy occurs with the

first division of the developing zygote, as a result there is extra

genetic material present in every cell of the individual. Recently,

science has discovered that this cellular ...

New t-shirts

Tigger — Tue, 23 Sep 2008 14:51:19 GMT

Was wondering if we could do some other t-shirts as well. Maybe with something like a small motif on the front and maybe "I love someone with Down Syndrome" on the back. Most people I meet have no idea what t-21 means although I love being able to explain it to them. I am extremely non-artistic so would need Tan or someone equally gifted to do the design. I know we don't have long until Christmas but I reckon they would be good gifts if it were possible to get them designed and printed ...

Swimming team

missyflower — Fri, 26 Sep 2008 22:37:03 GMT

http://www.downsyndromeswimmingaust.org/features.htm

For all those fantastic swimmers out there

Sad end to a wonderful life.

Cath13 — Wed, 15 Oct 2008 23:58:23 GMT

Here is a news story from my local newspaper.

A lot of people have been affected by his death as he was a real character but wanted to share his story as he had a full and wonderful life.

http://dailyadvertiser.yourguide.com.au/news/local/news/general/man-dies-in-crash/1334025.aspx

Thanks

Cathy

MMR Vaccine and Autism

Amarlismum — Fri, 05 Sep 2008 11:57:42 GMT

http://abcnews.go.com/WN/story?id=5719622&page=1

Life with Down syndrome - Share your story.

Amarlismum — Sun, 14 Sep 2008 14:46:11 GMT

http://www.ireport.com/ir-topic-stories.jspa?topicId=74830

Prom king with Down syndrome

Amarlismum — Wed, 01 Oct 2008 05:11:27 GMT

http://edition.cnn.com/2008/HEALTH/conditions/09/30/adult.down.syndrome/index.html

I have a great life.........

Amarlismum — Wed, 01 Oct 2008 05:08:25 GMT

http://www.chicagotribune.com/news/local/chi-sarahs-choice_0928sep28,0,4504921.story

Myths and Truths about Down syndrome

Amarlismum — Sat, 27 Sep 2008 09:15:15 GMT

http://www.ndss.org/index.php?option=com_content&view=article&id=59:myths-and-

Dan Drinker

shelley — Sat, 29 Mar 2008 22:05:56 GMT

I am not sure if this belongs here but I found this fabulous blog and thought I should share it - it is for Dan Drinker - a man in his 20's with DS - His brother Will is making a doco on him - there is a great clip on Dan talking about Obama that is well worth a look - but so is the rest of the blog. I hope you enjoy:

http://www.dandrinker.blogspot.com/

$34M donated to Down Syndrome research

Di — Wed, 24 Sep 2008 10:02:47 GMT

http://aurorasentinel.com/Main.asp?SectionID=10&SubSectionID=10&ArticleID=20521

Boy is just one of the band.

Amarlismum — Mon, 15 Sep 2008 01:15:34 GMT

http://www.centredaily.com/news/local/story/837976.html

Learning about Down syndrome

Amarlismum — Sun, 14 Sep 2008 13:40:11 GMT

http://www.cbsnews.com/video/watch/?id=4437874n

Six minutes of what you didnt see - Getting the diagnosis.

http://www.cbsnews.com/video/watch/?id=4437975n

Katie Couric's notebook thoughts on Down syndrome

http://www.cbsnews.com/video/watch/?id=4437235n

Written version of some of the interviews

http://www.cbsnews.com/stories/2008/09/10/eveningnews/main4437797.shtml

To infinity and beyond.

Amarlismum — Thu, 11 Sep 2008 01:33:07 GMT

http://www.cnn.com/2008/US/09/10/rescue.at.sea/index.html

DS 101 News Clip

Tammy — Thu, 11 Sep 2008 10:02:11 GMT

CBS News Article

Taken from CBS News so obviously American, but a really good news clip.

And Jack Murphy (age 16 when this was filmed) definately is "Outstanding, Outrageous, and Very good looking"

A Friendship Never Broken

trishy — Thu, 11 Sep 2008 01:38:38 GMT

I though this was a beautiful story about friendship, it would be so nice if all of out son's and daughter's with Ds had a friend like Nikki

A Friendship Never Broken

Laura has Down syndrome and was being mainstreamed at my school. After the bathroom incident, my mother sat me down and explained that Laura was �special.� She tried to get my five-year-old mind to understand about Laura�s mental ...

Read more

Nancy 's Blog - http://blog.360.yahoo.com/blog-w__IfhE_eqjOL8EBzGhWgn4fHw--?cq=1&p=6437

Changes to Embryonic Stem cells........

Amarlismum — Thu, 11 Sep 2008 01:36:23 GMT

http://www.sciencedaily.com/releases/2008/09/080904145053.htm

Palin the whole story

Aden's mummy — Tue, 09 Sep 2008 00:56:41 GMT

Sounds like she had the same struggles as many of us, and came to the same place we did

Most had learned that Palin was pregnant only a few weeks before. Struggling to accept that her child would be born with Down syndrome and fearful of public criticism of a governor's pregnancy, Palin had concealed the news that she was expecting even from her parents and children until her third trimester.

But as the governor introduced her son that day, according to a friend, Kristan Cole, she said she ...

Palin interview

Di — Sat, 06 Sep 2008 15:11:25 GMT

This is too wierd for words..

http://au.lifestyle.yahoo.com/who/news/04092008/sarah-palin-talks-about-her-family-struggles.html

1. She doesn't tell her husband for 3 days about the DS?

2. She doesn't tell her kids about the pregnancy even though she's pro-life

3. She doesn't tel the kids about the DS until he's born despite knowing from 13 weeks?

I wouldn't call WHO reliable reporting but if she's being quoted what a load of balony. Wouldn't trust that woman as far as I could ...

Ds man wins battle........

Amarlismum — Mon, 08 Sep 2008 14:11:11 GMT

http://www.eagletribune.com/punewshh/local_story_244021510.html?keyword=secondarystory

Govenor Of Alaska Sarah Palin

~Danni~ — Thu, 04 Sep 2008 12:54:02 GMT

I really like this lady. Her youngest child, son Trig, 4 months was born with Down Syndrome and was diagnosed prenatally. My mum told me about it when we were talking about how her oldest daughter, who is 17 is pregnant and unmarried and how the US press etc are making a huge deal about it. Im sure they wouldve made a huger deal had she terminated her baby son. Anyway, I saw the little fella on the news today, oh he is gorgeous And what was even cuter was that his older sister was busy cuddling ...

Bus Snub Pain

~Danni~ — Sat, 06 Sep 2008 13:05:48 GMT

I read this article in the paper today, poor girl all she wanted to do was catch the bus

http://leader-news.whereilive.com.au/news/story/bus-snub-pain/

Medicare and OT

Aden's mummy — Thu, 04 Sep 2008 16:23:15 GMT

Anyone know if you can receive Medicare for OT? You can recvie it I think I read for ST, but what about OT and PT anyone please?

I had a call today from our Pead and she said I can receive Medicare help for OT. she will write a referral) for my other son Matt, but Aden will not receive the same.

For Matt there is two options, one under Mental health for 4 visit�s the other under the new agreement for children with Autism. She is writing the referral under the Autism one. This will cover him ...

New Down Syndrome Test Hailed as Promising-Siblings Say Test Could Affect Dwindling Numbers and Raises Ethical Questions

Cath13 — Fri, 05 Sep 2008 22:25:27 GMT

It goes on for 4 pages:

http://abcnews.go.com/Health/Story?id=5729168&page=1

New treatment

Amarlismum — Fri, 05 Sep 2008 12:14:01 GMT

I thought someone might find this interesting, and want to find out more about it.

http://www.youtube.com/watch?v=WFKW7-DDzNo

the website it quotes is not .org, its actually, .com

Personal hygiene, and our kids...

Jules — Wed, 27 Aug 2008 07:06:46 GMT

I have recently joined the gym (3 weeks of hard slog, and 5.8 kilos gone forever ), and to my delight there is a girl there in her early 20's with DS who helps out in the cafe. I have observed her a couple of times, and in all honesty I doubt she is paid, as she just seems to wander about, stocks the shelves a bit in the cafe, then wanders up and does 10 minutes of an aerobics class , whatever she wants to do goes, I think. Still, fantastic that they are giving her a go, and she seems ...

A beautiful video done by a 13 year old.

Biddy — Fri, 29 Aug 2008 08:20:49 GMT

I received this from DSAQ and I just had to share . Its just so beautiful.

http://www.youtube.com/watch?v=MO911lWVGpQ

Course - Hands Can talk - Wahroonga

Veronika — Thu, 28 Aug 2008 01:19:21 GMT

I this 3 hour workshop participants will learn approx 80 signs, some which have been selected for their use in day-to-day life; others are relevant to the book 'Dear Zoo' and others will be relevant to Sing & Sign all using key word signing. There is an emphasis on how to implement the signs to be used in the story and songs, between the adult and the child, and the way that signing can greatly enhance literacy. This is a very good workshop for those just starting in the use of sign or ...